Showing posts with label neuroblastoma. Show all posts
Showing posts with label neuroblastoma. Show all posts

Tuesday, November 24, 2009

Thanksgiving




Thanksgiving is that time of year when everyone reflects on what they are thankful for. So today I will tell you what I am thankful for. I am thankful for my friend Nancy Armstrong. If you have read my past entries, you already know that this family means a lot to me. As a matter of fact, they are family I choose. Nancy has been with me throughout the good times and the bad. She held my hand through labor for Trisha, waited outside the delivery room until she was delivered. She fed me when I was hungry, gave me a place to live when I needed one, and has loved me unconditionally for 40 years or so. And she does this not only for me, but for all of her friends and family.
So now it is time for us to care for her. In October, it was discovered that she had 4 brain aneurysms. Yes 4!!! One would be too many, but Nancy had 4. She also had a small stroke, pneumonia, blood infection, uti, infection in her heart valve. Over the course of hospital stays, she had two aneurysms coiled, biopsy of her temporal artery, 4 days on the ventilator, countless IV's. And once again, I struggled watching my friend struggle with the ventilator. And I struggled trying to act big and brave for Dick and the girls. Today Nancy is slowing getting better and I want her to know just how much I love her.

I added the picture of my son Scott and his deer. You can see he really looks like a happy hunter. Later that morning he came back with the boys for a few minutes. Jayden and Bryce were so excited to tell me that Daddy got a big deer! I love the excitment in their little voices.

We also added a new member to our family this spring. Mr. Bentley Douglas moved in at the end of May. He is a black lab and was running down the middle of the road, no collar, no tags, no microchip. At the time he still had his puppy teeth and was about 4 months old. And what a nice dog!!! He was calm, quiet, well behaved. I called the animal shelters and told them how he was just running down the middle of the road and that someone was surely missing him. The animal shelter kept saying that if no one claimed him in a week he was ours, and I kept saying someone surely will be missing him because he was such a good puppy. Well, needless to say, no one claimed him and on day 8 he turned into the monster dog. He has eaten my coach wallet, a watchband, the house payment, a roll of paper towel, Scott's new T Shirts, 3 pairs of slippers, countless dish clothes, the corner of the kitchen wall, basically anything that does not belong to him. Whenever I lay a throw rug down, he redecorates by moving it to his corner and claims as his own. No wastebasket or litter box is safe! But who can resist those huge chocolate brown eyes! Not me!!! I wish you could see how he looks away and sneaks looks at you when he is in trouble. Yes he still can sit, shake, speak, whisper, fetch. Now you notice I said he can, I did not say he will. As for the name, well we originally started out with Bentley. Then one day Scott said "Hey Douglas" and Bentley acted so darn excited that Douglas has just stayed with him. So now he is Douglas, Bentley, or Bentley Douglas. At 73 lbs, I guess he can be which ever name he wants to be.
So you can see, my days are filled with fun. I am the lucky one who gets to be just the grandma!!!

Saturday, August 29, 2009

Cats, Kittens, Puppies, and Babies

Cats, Kittens, Puppies, and Babies you ask? Yes, cats, kittens, puppies and babies has been our life for the last couple of months. First, if you know me, you know there are cats here on our "farm". Lots of cats!!! I am the kind of person that firmly believes every animal needs a person to love it. There is Izzy, Ozzie, Booty, Boots, Cry Cat, Ethel, Harriet, Agnes, Lexus, Sebastian, Cali, Purrslee, Lula, Felix, and Shiver. Now some of these are indoor cats, some are outdoor cats, some are outdoor cats that are indoors for one reason or another. Take Purrslee for example. Purslee is a gray tiger that appeared to have hurt her back when she was only a few weeks old and was having difficulty standing up, soooo, she moved from the barn to the spare bathroom for some one on one TLC. Before long she was up and moving around and could even jump over a baby gate!!! Last Friday, she decided she has not had enough attention and tried to make me think she was going to kitty heaven!!! She would not/could not stand up, walk, eat or drink!!! She would even take a shuttering breath, wait for 30-40 seconds, and then take another breath. I held her, snuggled her, and cried for her all day Saturday and most of Sunday. Monday, no moving, eating, or going to the bathroom and sleeping all day, Tuesday the same, Wednesday she decided to open her eyes so I made her hamburger soup and syringe fed her. Thursday she decided to hold up her head and look at me, so I gave her some hamburger to chew on, and she ate and peed but still unable to walk or stand. Friday she ate about 1/2 cup of burger and drank about a 1/4 cup of water!!!! As of today, she actually walked/wobbled, about 3 feet trying to get to me so she could sit on my lap and purr!!!! Soooooo---Purrslee is showing tons of improvement and ,as a matter of fact, she is sitting on my lap as I type this note. Really, all she had to do was look at me and purr last week, she did not have to play such a game with me!!!

Well where there are cats, there will be kittens!!! Especially when Scott happens to let Izzy out of the spare bathroom, where he was healing up from a fight with another tom cat, and OH YEA, there is Shiver!!! Now Shiver had only recently moved to our house and has not been fixed. Shiver had 6 babies!!!!! So out of the spare bath moved Ozzy, and in moved Shiver and kittens. Then Ethel, an outside cat, decided to have babies in the mulch!!! So into the house came Ethel and 5 babies!!! All well and good as long as they are confined to the box, but soon there were ll babies who needed to move outside and down the road. We have a free kitten sign and actually, only one of those kittens is still here, Mr. FuzzBucket!! Does that mean there are no other kittens outside? No way!!! I can actually see 7 babies sitting in front of the garage as I sit here. I know there are some outside in the barn, not sure if there are 4 or 5. Now I know you all are going to ask why I am not a responsible pet owner and have them fixed, well if I took every kitten that shows up here to the vet, I would not own this house!!!! Seems like there is a sign that only cats can read out front that says "Free Food, Lots of Cuddles Here". The ladies from the church are even calling to tell me about some cat or another that is in need of a home or else, so out to the barn they go!!!

As for the puppy part, we have a new Black Lab. Bentley was a stray/dumped dog that was running down the middle of the road. I stopped, and in he jumped. I reported him to Animal Control and they advised me that Bentley would be ours if no one claimed him in a week. No one came forward for him!!!!! I thought, this is a great puppy, maybe 5 months old, he can sit, he is calm, he is quiet, surely someone will want him back. Nope. So at the end of the week, he became ours. And we became the owner of a rambunctious, loud barking, waste basket emptying, dog. He redecorates any throw rug in the house to a new location, chewed the corner of the wall, has destroyed slippers, emptied every waste basket in this house!!! But he only does this when you are not looking. When you are with him, he is loving, calm, even smiles at you. If I hear paper rattling and I catch him in the act, he actually looks away like "What do you mean, I do not have any paper!" Explain that to Wells Fargo when they open my last payment!!! Scott looked at him the other day and said "Hey Douglas! and guess what? Bentley was so excited that we actually call him Douglas most of the time now. Go Figure!!! So I painted the wall corner with Cayenne Pepper, moved the waste basket into the spare bathroom, and I pray that the puppy settles down to the wonderful Black Lab he should be. As I type, he is actually removing every bone, chew toy, balls, everything from his basket of toys. And I love him!!! I am not so sure that Buckwheat the Cocker loves him, but Baby the Beagle is his best friend!!! What would we do without the spare bathroom?

Now we are on to babies. We are going to be grand parents again in January. Scott and Brandi are having a Baby Girl!! Jayden, who is now 4, said that if the baby was a boy, he was going to throw it in the lake. Yesterday when Scott and Brandi told him it was a girl, he was jumping up and down and squealing!! Bryce, who will be 3 in November, said NO when asked if he wanted a sister. I call this baby our tie breaker since we have 6 grand sons, and 6 grand daughters.

Our Laura started chemo again last Monday. This chemo is to beat down her immune system so she will be able to receive the 3f8 treatments that put her into remission. She has not been able to get these treatments for awhile and can only receive them until December. She is still showing no signs of active cancer and for that we are so grateful. GOD is good!!

So as you can see, we have had a busy summer. I am so very blessed to be "Just The Grandma"!!!

Thursday, July 23, 2009

Kids, Kittens, and Puppies Oh MY

WOW what a long time it has been since I updated this blog. Just proves that life is as busy as usual.

Last Sunday the kids came for a picnic. Heather, Phil, and Ayden, Scott, Brandi, Jayden, and Bryce, Mikey and Laura. I love seeing the grand kids playing together and laughing and giggling. The swing set got a good workout and the kick balls have been kicked to there and back. Laura stayed over night with me and we had a great PJ party eating Chocolate Ice Cream and popcorn. There were also lots of petting of the new kittens.

Speaking of kittens, why do they have to be so darn cute!!! We have had several litters and have sent many to good homes, but there are a few still here and they are such fun to watch. Nothing like seeing 3 or 4 all snuggled together taking a nap or chasing each other back and forth across the yard. I will admit though that 13 babies in the spare bathroom was a little, OK alot, too much!!!

Then there is the new puppy in our life. We recently added a Black Lab, Bentley to our family. He is approximately 6 months old and has made himself very very comfortable here. Obviously he has been trained some because he can sit, and come. Now I said he can sit and come, not that he will always sit and come!!!! We got him as a stray and his first week was calm and quiet. After reporting him found to the Animal Shelter, no one claimed him so he became ours!!!! After his first week, his true puppy colors became clear. He loves the wastebasket, and unfortunately, the litter box. I hope that a few dietary indiscretions will teach him to stay away from these two things, but we will have to wait and see. It has been fun watching this 49 pound pup as he clumsily chases a ball or tries to get Baby the Beagle to run and play with him. Just try to be mad at him when he flashes those huge chocolate eyes at you!!! Or greets you with a big old dog kiss.

Today is my husband Scott's 55Th birthday. I told him that we are so lucky because now we can live in a trailer in a park for 55 or older only folks! He was not amused! Happy Birthday to the love of my life.

So that is how our life has been going. Fun, Fun, Fun. And since I am just the grandma, that is the way I like it.

Thursday, January 22, 2009

People Who Make Me Who I Am



As I go about my days, I am constantly reminded of the people who make me the person I am. So today I decided to tell you about these special people. First there is Dick and Nancy Armstrong and their three daughters Cindy, Cherie, and Christine. I met them when I was 15 years old, you notice I did not tell you how long ago in years that was! My best friend Jane Gallaway was babysitting for the girls and she needed someone to fill in for a couple of weeks while she went on vacation. Fortunately for me, unfortunate for Jane, I became the full time sitter from there on. I babysat the girls every chance I could, even going up north for weekends. By the time the girls were old enough to babysit, they were babysitting for my children. When Cindy got married, I was her Matron of Honor!!!! Nancy was with me at the hospital when Trisha was born and is her God Mother. When they thought I was too skinny, they moved me into the basement apartment at their house. There has never been a time in my life since I was 15 that they were not there, good times and bad times. In December of 2008, Dick had to have a double bypass heart surgery and as I watched him struggle with the ventilator, I struggled with my fear of losing the man who loved me more than I would ever know. Thankfully, he came through with flying colors. Nancy and Dick are now enjoying some warm weather in Florida. To say they are family would be an understatement. I love them all very much.

Speaking of Jane, she is now Jane Mayott. Jane and I have remained friends from the day we met in 8th grade. We both got married, moved away from home, and still remained friends. I had not talked to Jane in awhile when I ran into her at my son's Scott's school. I was walking down the hall and I heard behind me "Carolyn-I would know that butt anywhere!" Sure enough, there was Jane, a teacher at Fulton High School. She even was Scotty's teacher. I always laugh when I remember her telling me that she told him that if he acted up in class, she would tell everyone how she had changed his diaper as a baby!!! Jane has always rejoiced with me during the good times, and held me up during the bad times. She is a wonderful Christian woman and I am so thankful for her friendship.

My Grandma Agnes Marr also taught me alot about life. Grandma was always PROPER. By that I mean, I never saw her in pants, or with her hair messy. She was always dressed to the nines, hair perfect, soft spoken and impeccable manners. She taught me how to be a lady. We lived with Grandma and Grampa the year I was in 4th grade because my mother took care of Grandpa until he died. We had to be very quiet all the time and grandma taught me how to embroidery. I still hand embroidery to this day. I have become less proper though, giving up on stucking in my shirt and such, but there is never a day that I do not think about something she taught me.

I would be remiss if I did not mention my husband Scott. He certainly has made me a better woman, wife and mother. I have loved him since I was 14 years old!!!!! Scott works long hard days driving Semi to provide for us so that I can be just the grandma.

Of course there are the grand kids. They have tried my Patience, swelled my heart, made me laugh and made me cry. They have made me realize that being a grandma is the best job in the entire world. I am paid with wet kisses, big hugs, I love yous. I am rich.

Saturday, November 8, 2008

Pretty Please With Sugar On Top








Who can resist those words? Not me!!! And apparently not Grampa Scott!! One of the things that Laura and I love to do is go to Pet Smart to visit the fish, hamsters, birds, kitties, and see the dogs that are there for a hair cut. Where you first walk in there is this huge display of Christmas vests for doggies. Here is our conversation:
Laura: OH Grandma Look at these cute sweaters for Baby.
Can we get one pretty please?
Me: Oh Grampa would never go for that!!! (Same conversation happened on Halloween!)
Laura: Come on Grandma Pretty Please Grampa will say yes if I ask him (imagine her saying this with the I know he will attitude!!)
Me: I do not think Grampa will go for that Laura
Laura: Can we call him pretty please, pretty please with sugar on top!!!
Me: OK ( I can not say no to that!!)
So I dial up Grampa and put him on speaker much to the delight of all the other people standing by us.
Grampa Scott: Hello
Laura: HI Grampa can we buy a sweater for Baby?
Grampa: A sweater for Baby huh
Laura: Yeah you know because she is cold when she goes outside
Grampa: Did Grandma say that? as he is chuckling
Laura: Pretty Please Grampa Pretty please with sugar on top?
Grampa: What kind of sweater?
Laura has to pick up several to look at while Grandpa waits and all the bystanders are anxiously awaiting the answer!!!
Laura: Like this one (as if he can see through the phone)
Grandma: In the background Pink argyle
Grampa: How much is it?
Grandma: You do not want to know.
Laura: Can we please Grandpa Pretty Please with Sugar on Top?
Grampa: Ok go ahead
Laura: Bouncing up and down Yeah thank you Grampa.
Grampa: Good Bye Laura, I love you.
Laura: I love you too!!!!
So here is Baby with her new sweater and here is Laura on the way home. I guess it is pretty tiring to pick out a doggie sweater!

After Laura falls asleep on our way home, I call Grampa and he tells me that "You know I can never tell her no!!! Of course, my comment was "That is exactly why we called you, I can never tell her no!!!"


This last week Jayden and Bryce spent a couple of days with me. Jayden knows the pretty please ploy as well.
On Monday morning I picked them up at home and brought them to our house. On the way home we had to stop at the grocery store to by milk. So as we go by the donuts, the conversation goes like this:
Jayden:Oh Oh Grandma look at the doughnuts-can we get some for Grampa pretty please?
Me: Pretty please? For Grampa?
Jayden: Yes Grandma Grampa wants them pretty please with sugar on top!!!
Of course, you guessed it, we bought donuts, and milk, and bananas, and grapes, and eggs, and cearal, and pudding, when we really only needed milk!!!!! Grampa really did like those donuts though. On Wednesday Great Grampa Joe came to visit for awhile and we had a lesson on hearing aides.
Jayden was trying to talk to Grampa Joe and I was trying to explain that he needed to talk a little louder because Grampa Joe has a hearing aide.
Jayden: What is a hearing Aide?
Me: See look in Grampa Joe's ear, see the hearing aide? It helps him hear what you are saying.
Jayden: Why does he have a hearing aide?
Me: He has it to hear you better (for the tenth time!!)
Jayden: I can hear.
Me: I know, but sometimes people have to have a hearing aide to help them hear, like Laura has one too.
Jayden: No she doesn't.
Me: Well, yes she does, just not right now. Try to explain that to a three year old.
After Grampa Joe went home Jayden and I discussed the hearing aide, oh I don't know, a hundred times more.


Here is a picture of Grampa Scott and Jayden and Bryce. We really had a good chuckle from this conversation:
Jayden: Grampa Scott your jeans have a hole in them!
Grampa: Did you hear that Grandma my jeans have a hole in them!!!
Bryce: See See the hole!!!
Me: Thanks for telling me boys-I will have to fix (throw away) them!!!

I am so blessed to be just the grandma!!!

Sunday, October 19, 2008

The Granny Sqaud










I met the most amazing woman in New York. Her name is Barbara Zobian and she is the President of the Candlelighters of New York City. Barbara Zobian is an extremely giving person. She is a full time volunteer and works hard to make life easier for people affected by childhood cancer.
She certainly deserves the high praise and honor she recently received after winning first place in the OTTY awards. The "Our Town Thanks You" awards are given to leaders in the East Side neighborhood who "make special contributions to the greater New York City community." Barbara has co-organized the St. Baldrick's Boathouse at Central Park event for the past few years and has successfully launched Candlelighters, NYC, a branch of a national organization that supports families of children with cancer - needless to say, she keeps busy! Barbara provides support meetings, ensures the children and families touched by pediatric cancer are as comfortable as possible, and enjoys getting to know and play with the kids. She told Our Town newspaper, "New York is a magnificent place. Everyone is so helpful. Ours is a community that loves kids."

Here is one of her notes: This picture of four year old Laura and her Mom Trisha was taken yesterday. Laura came over wearing her footie pajamas, to meet me and Uno for the first time. Tonight is Trisha's 33 birthday and I have arranged for her to have a Birthday party at Maz Mezcal Restaurant, all donated. They are going with another wonderful family going through the same thing they are.Trisha said that this is the first time Laura has smiled in two weeks. How can I not do what I am doing. I am blessed to be a part of these wonderful children's lives.love,Barbara

Barbara is helping me with a new project. As a grandma to a child with cancer, Barbara and I both feel that grandma's have double duty so to speak. We have to watch our own child watch her child suffer with this monster of cancer. I have found that only grandmas with grandchildren who have cancer can understand what this life is all about. Other Grandmas are caring, loving, and sympathetic, but They Do Not Really Understand what it is like to walk in our shoes. And I pray to GOD that they never have to. As for the rest of us grandmas, we need other grandmas to share with, cry with, celebrate with, grieve with, and sometimes to just try to forget for one second that our children and grandchildren are living with this monster. So with the help of Barbara and the sponsor of Candlelighters of New York City, we are forming the GRANNY SQUAD!!!!!! CandleLighters is providing a conference call number and we would like to set up a time for all grandmas to call in at one time, to cry, laugh, celebrate, grieve, and just share the joy of being a grandma. Thank you, Barbara, for all you do for me and for our children's families. You are my inspiration. And who could not just love Uno the therapy dog!!!! Please, if you are a grandma to a child with cancer, please contact me at carolyn_wing@yahoo.com so we can get this going. I really am more than just the grandma!!!!!!!!!!!!

http://www.candlelightersnyc.org

Sweetest Day



Sweetest Day. HMMMMMMMMMMMM I did not even remember it was going to be Sweetest Day until Friday evening when I arrived at the grocery store. I walked past a chocolate chip cookie as big as a pie, decorated with a huge Happy Sweetest Day LOGO and lots of frosting. Then past cupcakes decorated with the same, then small cakes, and finally Sweetest Day cards. HMMMMMMMMMMMMMM Must be Sweetest Day is coming, OH WAIT---It is the very next day and I do not have a card or a present for my husband Scott!!!!!!!!!!!! So around the store I go once again picking out the perfect cookie, and the perfect card. And just think, if I had not needed eggs, I would not have even remembered!!!!!! Scott loved the cookie (of course not as much as if I had made it) and the card was a hit. But you ask what was his gift to me? Well, not a cookie because those of you that know me, know that a cookie would not pass my lips. Scott's present to me was in a conversation we had later that day. It went like this:

Scott: I love you.
Me: I love you too. I like us like this. You know, close and happy.
Scott: Me too.
Me: What did my note say that you found?
Scott: It said "I married you then, and I would marry you again"
Me: I would, you know.
Scott: Babe - even if we had to do all this again (Laura's cancer), I would still marry you again.

That statement was the best present Scott could ever give me.

Does sweetest day have to be a holiday?? No. I think any day is sweet, but some days are sweeter. Like yesterday.
There is a very sweet little guy CJ Shaw who was diagnosed with medulloblastoma on December 1, 2006. He had two masses on his brain and had emergency surgery that night to remove the larger of the two. A few days later he again had surgery to remove the other mass. It was cancerous. You can read his updates at:
www.carepages.com/carepages/CJShaw/updates
CJ's aunt Erin is putting together a wonderful fundraiser for CJ and his family. I called her and offered to help out. So yesterday I spoke to Mrs. Michigan and asked her if she would like to make an appearance. Here is the sweet part--she said yes, without a hesitation in her voice, just YES!!!! It would be her pleasure!!!!! How wonderful it is that someone as important as Mrs. Michigan would just say Yes, just tell her when and where!!!! I have included a picture of her with Owen and Rich Michaels at Laura's fund raiser. I have never met CJ in person but he is one of my little angels in my Angel_Wings prayer group. His grandma Michelle and I have never met either, but we have talked on the phone and emailed back and forth. We have that the common thread of being the grandma to a child with cancer. I can not wait to share a grandma hug with her. That is the joy of being just the grandma!

Friday, October 3, 2008

Childhood Cancer Neuroblastoma

Each school day, 46 children are diagnosed with cancer.

*On the average 12,500 children and teens will be diagnosed with some form of cancer each year in this country.

*One in 330 children will develop cancer by age 20.

*Although the 5 year survival rate is steadily increasing, one quarter of children will die 5 years from the time of diagnosis.

*Cancer remains the #1 disease killer of America's children - more than Cystic Fibrosis, Muscular Dystrophy, Asthma and AIDS combined.

*In the U.S. almost 3,000 children do not survive cancer each year.

*Over the past two decades, only ONE new cancer drug has been approved for pediatric use.

*Currently there are between 30-40,000 children undergoing cancer treatment in the U.S.

*Every 16 hours a day a child with Neuroblastoma dies.

*As a nation, we spend over $14 BILLION per year on the space program, but only $35 MILLION on Childhood Cancer Research each year.

*There are 15 children diagnosed with cancer for every one child diagnosed with pediatric AIDS. Yet, the U.S. invests approximiately $595,000 for research per victim of pediatric AIDS and only $20,000 for each victim of childhood cancer.

*Research funds are scarce as most money is diverted to well-publicized adult forms of cancer, such as breast and prostate.

*In 2005, the American Cancer Society provided only 2.5% of funded grants, or 1.85% of dollars spent on research to pediatric cancer. ~Where the heck is all their money going? If they were to give all the money they received to research we'd have a cure by now!

Pediatric Cancer is more common than you think! It's deadlier than you know and, it doesn't have the research funding to get any better! Right now, this second, somewhere in America, there are 7 children fighting for their lives who won't live through the day. WE CAN DO BETTER!

Thursday, September 11, 2008

Joys and Sorrows








Several events over the last few weeks have brought great joy. Laura started kindergarten!!!! This is a day we always dreamed of, but never thought we would see after her diagnosis of Stage IV neuroblastoma. Owen is the 2nd grade. Where does time go? Laura's recent scans show her to be NED (No Evidence of Disease). Truly an answer to prayer.
I have had the privilege of being a Chemo Angel to a very very special boy, Sean.
Sean had been diagnosed with Stage 2 Embryonal Rhabdomyosarcoma (botryroid type) located in his bladder. He was treated at Texas Children's Cancer Center. Sean had his end of treatment scans on 8/11/08 & 8/14/08. His chest CT came back clear. His pelvic MRI again came back with no tumor found. Sean is off treatment & considered to be NED (no evidence of disease). Sean, his brother Michael,and his mommy Shannon and Daddy Nick live in Texas. I have not met this precious family in person, however, I have gotten to know them through Sean's caringbridge site. What a privilege and joy to be allowed to share his journey. I received a very special thank you note from Shannon and both Michael and Sean made me a card!!! I will treasure these forever.

There were also many things that brought me sorrow.

My 15 year old Cocker Spaniel Bailey developed a cancer in his mouth and I had to allow him to go to heaven. Bailey has been blind and deaf for many years and had a stroke about a year ago. Even though I knew this time was near, I just wanted him with me as long as possible.
A few months ago I met a wonderful women, Dr. Val who is a veterinarian. She has held a very special spot in my heart since the day I met her. I truly think she really is the only person who understands that my pets are my family. She probably would not even laugh if I told her that they sleep in bed with me!!! Even up on Scott's pillow when he is not home. My husband Scott is gone alot and they are my company. Dr. Val is the only Veterinarian who I wanted to be with me when Bailey went to Heaven. I know Bailey is running and chasing tennis balls all day long. I miss him.
I met a family out in NY last December who were battling Rhabdomyoscarma. I have keep in touch with Jason and his Mom Nancy. Jason was declared NED after his treatments. Nancy and Jason received the most devastating news, Jason has relapsed. When I saw them at the hospital last week, all I could was hug Nancy. Jason greeted me with a smile and lots of dimples. My heart was breaking watching him suffering from vomiting while getting his chemo. I told Nancy I would trade me for him any day. This family is in need of lots of prayers.

I really want to end this on an upward mood so I am going to tell you about my beagle Shy Baby. Baby will be turning 1 on 9-29-08!!!!!!! I believe that Laura and I will be making muffins or cupcakes for Baby. Then there will be a little party with Baby and Buckwheat my other cocker Spanial. I can not imagine a better way to spend my afternoon, listening to Laura sing Happy Birthday to Baby and listening to her say "Oh Baby-You just can not control your licker!!!" as Baby washes Laura's face. These are the days that I will cherish forever, the days when I am just the grandma!

Wednesday, August 13, 2008

Heart Tugs and Heart Swells








One of the things I love about being a grandma is that I get to be Pseudo Grandma to some very special kids. Last year, while we were spending so much time up on the 7Th floor at Mott's children's Hospital at University of Michigan, I became pseudo grandma to a special little boy named Benny Lewis. Benny's sister Ali was a patient there being treated for Leukemia. I just loved it when Benny came down the hall and screamed "Grandma!!!!" as he ran into my arms. I will never forget how he could hug and hug, then run down the hall to play. I remember one night when Ali's mom Sharon had gone back to the Ronald McDonald House to get some rest and Ali was super fussy. I spoke to her nurse and was allowed to try my grandma bounce with Ali. What a wonderful feeling to hold such a sweet baby, IV and all, and bounce down the hallways to comfort her. And the smell of a sweet baby, you do not have to be a grandma to know that precious baby smell. Little Ali would calm and appear to fall asleep only to wake again when I would lay her down. So off we would go, bouncing down the hallway again. On a different night I rocked and rocked her as she snuggled against my shoulder. Little Ali lost her battle with Leukemia and earned her precious angel wings January 9, 2008. I heard this from another family who were patients on 7. My heart was broken, sad to have lost sweet Ali, sad that I would not see Benny again, sad that I had not gotten Sharon's address, phone number, or email. Well GOD took care of this for me!!!! Sharon posted a message on my grand daughter Laura's page!!!!! I replied to that message and asked Sharon to email me. I was able to share with her the picture I had of Ali on Halloween and she shared pictures of Benny and Angel Ali with me. My heart swells with love when I see those pictures, and tugs to know this precious baby is in the arms of JESUS. I sent Benny a silly little homemade card, and yesterday when I opened my mailbox, I found one of the best presents of my life, a picture from Benny!!!!!!!!!! That picture is now framed and hangs right in front of my laptop!!!! October 15Th is Infant and pregnancy loss awareness day. I will be ordering a T Shirt from Sharon to were that day to honor sweet Angel Ali.

Another Heart Swell day was July 25Th, Jayden's 3rd birthday party. I just had to giggle when Jayden comes up to me with his "Hey Grandma my hair is all spiky!!!!!!" Who knew a three year old would love Spiky hair!! What fun to watch him as he moved from one thing to the next at the speed of lighting!!!!! Bryce had gotten a baby shot that same day and was extra cuddly, lucky me. I snuggled and snuggled him for most of the evening, enjoying that sweet little boy smell. Yes truly a heart swell day.

Another Heart Swell day was August 7th when our grandson Ayden turned 4!!!!! Holy moly where does the time go? I believe that he will be a pro golfer if his daddy has anything to say about it!!!!!



I also had a Heart Swell day last Friday. Laura's best friend Sydney came over to play and I had so much fun just listening to them giggle and play just like little girls should. At one point, they were in the bedroom putting on little bracelets and necklaces and Laura promptly told me "Look Grandma, we are getting popular!!!" hehehehe

I am not sure if this next segment is a heart swell or a heart tug, I guess a little of both. Since the summer is coming to a close, and school is stating soon, I have found myself a little at loose ends. Laura and Owen are going to school soon and won't need me to babysit as much. My heart swells knowing Laura's neuroblastoma is in remission and she can start kindergarten, and tugs that Laura is well enough to start kindergarten. So I figured that I needed to do something to fill up my extra time. I am volunteering at our local hospital in the new gift shop. After all, this is what you do when you are just the grandma!!!

Saturday, June 21, 2008

Happy Saturday

Well Happy Saturday. I have decided to set up my own blog to share my world of being a grandma. I have 12 grandchildren. Jayden, Bryce, Laura, Owen, Ashley, Ben, Connar Rae, Mikayla, Faith, Logan, Ayden, and Lydia. I plan to share how my days are spent loving these special children.
I also have the special privilege of watching my daughter Trisha raise her children from a very different perspective than most parents. Since Trisha's daughter Laura was diagnosed with Stage IV neuroblastoma, I have had the honor to be beside her almost 24/7. What a blessing for me. I tell Laura that I have the best job in the world, being her grandma. My amazing husband Scott is a semi driver and I was able to leave my job to do this for my family.
I hope you will stop by again and learn all about my grandchildren.